Premature babies support group

Thk u mummies for the support.

breasts are very engorged (finally n suddenly ard 1am today) but no let down and despite pumping, massage, no bm can be expressed. What can be done next?

Is there somewhere to go at Kkh on a Sunday who can help? The pain is excruciating and I am feeling hot n cold as if catching a chill.
 


Babymaking,

Are you having fever? If yes, better go to women A n E to see doctor . At there, the sister will help u. They will help u on the engorgement .
 
Hi Twin Mummy,

It is better to transfer to KKH earlier. My wife almost got turn away as we were with Mount E from the start. Our Gynea is very helpful as she know the bill in private hospial will cost a bomb. She show us the way to transfer us back to KKH. Do check with your Gynea if he/she can help.
 
Hi David, thks for the reply. Can you PM me the trick that the gynae shared with your wife? I need to get myself onto the subsidized rate.

Pls advise.
 
Klarissa developed blood septis resulting in a grade 4 brain affecting left brain totally. Right brain also has mild bleed. Anyone with kids who suffered a grade 4 brain bleed and had a good prognosis?

The docs n nurses warn of extensive motor, sensory n intellectual difficiencies over long term.
 
babymaking,

My son was born at 750gm at 24weeks five years ago. He had grade 3 brain bleed and he also had sepsis as I had passed it to him when I was hospitalised before birth. I stayed in hospital for more than a month actually before and after birth.

The prognosis given for my son was not good also and I was very disheartened.But now, five years on, hes okay and attending a childcare. To me, early intervention is very important and everything is possible !!dun lose heart..pm me if you want smbody to talk to or ask questions here. We are all willing to help you along the way.
 
hi costa

thks for sharing your experience.

Dear all
Thanks for sharing your experience but Klarissa has left us yesterday afternoon from the massive bilateral brain bleeds. We will be celebrating her short life this coming Saturday with a service.
 
Babymaking,

*hugs*...I m not good with words but juz hope that you will b strong n keep yr faith. Klarissa is an angel and would b looking out for mummy n daddy from above.

Have kept her in my prayers and will continue to do so for you and family.
 
hi babymaking, i am so sorry to hear about the passing of klarissa. i pray that your family will find comfort in her short life. it must be a very difficult period for you...
 
Babymaking
I'm so sad to read yr post. It must be so hard on you n your family. I'll keep Klarrisa and your family in my prayers. Take care and be strong...
 
Babymaking,

Klarrisa is home with the mighty one. Though the moment is short, it is the love and bond which you and Angel Klarrisa had share which was so beautiful. Be strong.
 
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Bought Nov 2010, rarely used, still in good condition!
Selling $350.

PM me if keen.




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thank you for your expressions of sympathy. it's still very raw but i believe it will take time to lessen the grief. one day i will be able to walk pass the section selling baby girls clothes and not tear away.

i have something to find out before my final appt with gynae, what are the probability that one will have another premature birth the next pregnancy?

did anyone of you get a conclusive answer why premature birth occur for the pregnancy and what are the things that can be done to prevent it from happening again?

anyone here went ahead with trying to conceive/have successfully conceive to near full term/normal term babies?
 
babymaking,

hugs...my first child was nt premature but my second child was premature...mbe get the doc to check what were the factors involved to ensure your next gynae knows the issues involved..

there are afew mums here who went on to have full term deliveries...guess all pregnancies are unique unless there are some prevailing common factors which caused the premature birth..

do share your thoughts here with us..
 
hi babymaking, my first was not premature but second one is. I had premature rupture of membrance. till today, noboday can tell me what caused the rupture. It was a simply a spontaneuous decision of the body to caused the prematurity. I have wanted very much to have a 3rd kid but chances of me having another premature baby is higher as compared to the norm. Like what costa del sol said, some mummies went on to have a term baby.
 
Babymaking, sorry about your loss. Please take care.

Since we are on this topic, I'll like to ask if anyone who had premature bb due to pre-eclampsia went on to have another term bb? Was told by a doc in polyclinic that the chance of having pre-eclampsia in next pregnancy is very high. My gynae didn't say. I guess I forgot to ask either.

I hope to have 3 kids actually.
 
Hi Kelly,

My wife developed pre-eclampsia for our 1st child. KKH gynea did mention that she will a high possibility of having pre-eclampsia in her next pregnancy. So I decide that I do not want to risk her life so we stop at 1.
 
thanks David. I'm a little sad on hearing this.

A little down today due to a mixture of good and bad news. Good news coz my girl is no longer having ROP. Bad news coz she's having some kidney problems. This was the cause of her recent episode of UTI. Heart Pain... She got to undergo so many scans and pain. They couldn't set her IV Plug. Had to get the registra in. Seems like all the intense pain also caused her blood vessels on her head to burst. It's obvious as she got very little hair. Pain.. Pain..
 
Hi Babymaking,

The docs were unable to give me a reason for the prematurity and there was nothing wrong with my health. Nevertheless I have decided to stop at 1.
 
Hi babymaking, hugs to you. I know how hard it is, cause i had been thru the same thing as u before. if you need any help, just let me know.

my boy was borned 23 weeks + and left us two days after nicu. He was also having grade 4 bleeding in brain, to prevent his pains, we let him go. It was a painful decision for us, but the doctors told us the same thing about long term disability. So I could understand totally how you are feeling now. When I saw people with baby boys that time, I was tearing away too. Worse, my house was full of things i bought for my darling. It was heartbreaking. My eldest boy is resting in changi sea now and I do visit him during his birthdays.

But now, i have two other children, a boy and a girl. My boy is born 27 weeks, and girl is 34 weeks, they are all doing great. Do not fear, I have a weird body, not everyone will have all their children to be premature babies. Mine is genetic factor, cause me and my sis are both premature babies as well. I am born 27 weeks.

For those who are asking whether next one will be premature again, or having same problem again, I can tell you, be brave. I was full of fear too, but I tell myself, life is only one time, I must have no regrets. I want to have at least two children, and I want to do it. My 2nd boy was premature because I conceived again only 3 months after i lost my eldest. The resting time was not long enough. For my youngest girl, I conceived only after resting for 2 years. Once I got pregnant, I rested all the way and I managed to hold her till 34 weeks.

So I believe, if you want another, just go for it, but make sure you build up your health and body first. Rest for at least a year, before you conceive again.

And there are many mummies here who have premature babies, and full term babies too! dun worry.

I believe all things happened for a reason. I question, I ask, why is life so unfair. Why others have smooth pregnancies, and labors, why not me? But maybe it is planned to make me appreciate what I have more, and to remind me life is never smooth, and I must be thankful of what I have in life. I am thankful for my two kids.
 
Hi all,

My baby girl passed away on December 05 after been discharged from the NICU on December 03, where the doctor said she was in excellent health.

She passed away at around 4 - 6 a.m. on December 5th.

The cause of death was put as respiratory failure due to aspiration.

My wife was feeding our baby for the 4.30 a.m feeding and burped her for the 1st round. After that she tried feeding again, but did not drink so she went on to burp her , but she suddenly brought both her arms to the center, my wife panicked and tried to burp her again and then turn her over and hit her back hard like the doctor told us and no response, we rushed her to the hospital while hitting her back but when we reached the hospital, the doctor tried to resuscitate her but to no avail. They did suction and milk came out among other liquid.

The doctor told us that something must have been stuck either fluid like the milk or mucus.

The doctor said she probably passed away at home. At our state of panic we didn't do CPR which is our greatest mistake as she might had a chance to survive. We feel that we killed her.

We should have bought a heart monitor to monitor her heart beat as we thought she is sleeping like she always does after drinking milk. The doctor told us not to buy as as she is alright and we mght become too dependent on it. We should have just bought it anyway.

I cannot stop thinking about her , she went through so many things and survived 4 months in NICU and came home for two days and passed away.

She had this issue in NICU two times but after about a long time she did not have this issue again.

We looked for all the signs that nurses and doctors told us,but we did not see any of these signs.

We were not careful enough and did not do enough to save her.

I would advice that you have someone else with you at all times, besides the parents so that the person would think properly instead of panicking.

Also, don't care what anyone says, have a heart monitor if she has some issues with heart or respitory. Don't be stupid as us.

I cannot accept the fact that we killed her, if only she would have given her sign such as color changing or something to tell us. Or maybe we are not fit to be parents.

i don't know I just can't forget her and I don't know what to do.

I want to thank everyone for all your help you have provided through these times.

I don't know if I want to have another baby as she will always be in my heart and will forever be asking for her forgiveness for not been able to save her.

I miss her dearly and cannot forget her, she was such a beautiful girl with big eyes and smile and not fussy, when you bathe her, she never makes any noise like other babies screaming etc...

She never gave us issues but we are forever at her debt.

I so miss her....

Thank you again to all for your help. Appreciate it.

I hope she forgives us one day.
 
Dear Suda,

I am sorry to hear about your lost. No parents ever wanted any mishaps to happen to their own child. It is nobody fault.

Please be strong and brave as your wife need you most at this very moment. Things happen for a reason in life which we cannot understand at time. Don't ask why as you will never find a reason. Be brave and continue to live strong.
 
Hi Suda

I read with tears on the pass away of your gal. I'm so sorry this has to happen to your family. I know no words can bring back the lost or take away any sad feelings, but try to be strong...and its really NOT your fault, cos its only normal to panick like parents would...

We had the same experience as you more than a year ago. Our little Ryan was discharge CA 35 weeks after staying 6 weeks in NICU. On the 6 day, I was giving his night feed at 1am, when he suddenly 'choked' on his milk and turned blue and then limp... We tried all the ways of reviving him as taught by the nurses; rubbing the heels, stimulating the stenum, but could not. He was totally lifeless... I panicked and could only ask GOD to help me. Luckily, my hubby was more steady and suggested that we do CPR. At that, I came back to my senses and took over the baby CPR (Note that this is totally different from the adult version). Thank GOD, his face colour started look normal. And after 2nd round of blow, he cough and finally after the 3rd round of blow, he let out a cry... If we had waited for the Ambulance to arrive, we would have lost him too...

So my advise for all premie parents is also to stay calm and if possible, please take a course in CPR or artificial respiration.
 
suda, my condolences.... pls take care and be brave...

kelly, re pre eclampsia... some forum did suggest taking aspirin (think after first trimester) for subequent pregnancy which can (not sure reason why) lower the chance of pre eclampsia. I asked my gynae abt it after my first birth (pre clampsia 34weeks pre term) and she did say can try that (no guarantee) but in the end stop at one (due to family issues) so never know if it will work for me
 
Suda,
I'm shocked and pained to hear about the demise of your girl. It reminds me once again how important it is to learn CPR. Please take care, especially your wife.

Bloom,
Thanks very much for the info. After hearing the advice from everybody, I will ensure my health is good before considering anything else.
 
Hi All,

I just got a call from KKH that my gal need to go for the IQ test. But the nurse that called me is not that friendly and in a rush. She didnt even tell me which building or level to go.

Anyone can advice me on where is the location in KK for this IQ test?

Sigh.... after getting that call, it reminded me again those days when i keep getting call from hospital that always left me worry a lot. Dunno what will went wrong with my gal.
 
ai xin,

how old is your child?

its held at the child development unit at kkh....at the women's wing...think its 5th Floor as i just went there three days ago...

u may want to call child development unit for more answers...the number is 63942135

hope this helps..
 
Suda,
Don't blame yourselves. You and your wife are definitely good parents. Things just happened this way, accept it and move on.

Take care.
 
Firstly, I'm so sorry about what happen to suda. I'm not very good with words, so I can only hope everything will go the very best for from now onward.

Hi everyone. I'm new here and am a daddy to be for the 4th time. But wifey and I still do not have any children because we had lost the previous 3 pregnancies.

This pregnancy, we are very happy and surprised to have twins! Not sure if it's too early to ask cos we are only 9-10 weeks pregnant but were hit when our gynae informed us about the cost involved if the babies were to arrive
premature.

Because my wife is not a local, I'm trying to find out what kind of costs are we looking at. My current gynae operates in mount e, and I don't think our bill would be much cheaper if we are to go to a government hospital?

Hoping all knowledgeable parents here can help, cause I do not want my wife to worry about anything else as she's also diagnosed with blood clot in uterus.

Hope to get replies soon.
 
Hi Costa,
Thanks for the information. My gal is 2yo CA, actual age 26 months.

Raytcz,
The bill of premature baby in gov hospital can be a lot difference from private. And the facilities and equipment also more complete in gov hospital. Are you Singaporean? Your wife PR? Even PR like me n my husband, we saved almost 50% ~13k on my gals bill. She stayed in his for 46 days. If your Singaporean it will be more subsidy of course.
I really think you should seek consultation from KKH Gynae and make arrangement to give birth there.
 
hi aixin, thanks for yr prompt reply.

unfortunately, my wife is not yet a PR and only holding a LTP. yes i'm a singaporean, but i think we still pay private rates?
 
also, besides kkh, how about nuh? because we had a bad experience at kkh during our 2nd miscarriage and now my wife refuse to go there.
 
Hi daddies n mommies, yesterday's visit to e hos kinda dampens my mood..my gal is now CA 7.5 mth n AA 9 mths, n she can't sit herself up yet n no teeth too..physiotherapist she is a little weak in her hands, trunk, hands.SLT says her cheeks, jaws is weak..made me so sian..just wanna ask abt e devt milestones of ur babies..how is it?i guess I need some reassurance..
sad.gif
 
hi julbee, my boy's teeth started sprouting only when he was about one years old. I was super worried but Dr. Argawal kept assuring me that its ok. Some babies don't sprout teeth until much later. In terms of motor skills development, there were some issues initially. OT and PT suspect that he might have congenital muscular torticollis cos' when we propped him up (in a sitting position) his head will flopped significantly to his left. The recommendation was that I had to do therapy with him on his neck at home. Subsequently, with much therapy, that issue was resolved. After this incident, I became aware that pre-term babies need more deliberate stimulation so I started doing alot of excercise with him to ensure that his motor skills are on par. The therapist always send me home with some worksheets that have diagrams to show the kind of activities to encourage our babies to practice. I felt that it was quite helpful. I can't really comment about the jaws part cos no experience on that.
 
Hi Raytcz,

You may also want to consider SGH. The level of care from SGH is quite smiliar to KKH and most of the senior consultants practise in both SGH and KKH so in terms of expertise, SGH is on par with KKH. But would also like to highlight that many follow-ups after discharge from SGH will be done at KKH as they have the specialists there such as eye centre, children surgery centre, cardiac centre etc which SGH does not have.

Take care and all the best for your wife's pregnancy.
 
thks all for sharing your experience and knowledge, it has been a while since i revisited this thread. it's has been too painful since.

suda
no words can express my condolences for your loss, so sorry that you and your wife have to go through this.

Pls do not blame yourself for your loss, in any situation like this, it's natural to panic and on hindsight..there will always be 'what if's' - till today my hubby blames himself for not being able to fly back from china in time to prevent klarissa's premature birth. he felt that if he had been ard, he can motivate the medical staff to react faster to administer the drugs to prevent the birth. but we will never know, and there's just no point in second guessing the what ifs. what if i had reached the hospital earlier, what if the gynae have been more viligant in reading the scans himself, what if the medical staff have reacted faster, what if the medical staff were more experienced to react, etc (although for the latter, we are following up with KKH MA office for a complete investigation for possible neglience)

if it may help you, please contact the child bereavement support group in Singapore, they have resources to deal with grief.
http://www.cbss.sg/how_to_cope.html

kkf
thks for sharing your painful experience, we also had to make the decision to let klarissa go as she had bilateral grade 4 brain bleeds and no viable brain tissue left. with extensive disability as best case scenario and watching her go into fits and clearly struggling in pain (extended abdomen and rigid body) we let her go. I am not sure if we have the courage that you did to go on to have another child.

we conceived via ivf, and numerous attempts at that, so embarking on ttc for another child is another stressful journey that's fraught with disappointment and while i would like another child, i am not sure if mentally i am strong enough to suffer another disappointment.

After open heart surgery, 2 miscarriages, 1 life threatening ectopic, numerous IVFs and FETS, operations, klarissa's death is the straw that broke the camel's back.
 
Twins -mummy gals
Hi, I can understand the fear that you are going thru at the moment. I delivered my identifical twins boys in oct 2010. My first twin was a lot bigger since the first scan. We have been adviced by the doctor that my smaller twin may not survive due to twins to twins transfusion (TTTS). I downgraded from GMC to NUH from the advice of my doc due to the possible prolong hosiptal stays.
I stopped to rest at hospital after I had contractions from 28 wks. With the close monitoring fom the doc from NUH, I delivered my boys when they were 36+6 wks. My elder twins weighted 2.95kg while my younger twins weighted around 1.98kg. He stayed in the NICU a day for monitoring.

I am blessed with a set of healthy twins. I am sure you will be ok. Have faith your doc as they are the one who will monitor you and the babies closely.

Have a smooth delivery.
 
Hi Anna, care to share who is your gynae at NUH? Our current gynae is at mount e. didn't realised the costs involved if there r complications when he advised us to change to a government hospital n told him confidently that we wan him to see us to through. after going back n doing research did we realise the costs thats going to be involved, moreover my wife being a foreigner would be even worst.
 
Suda,
My deepest condolences to you and your wife. Please do not blame yourselves. And take good care of each other in these difficult times.

Kelly,
My gynae at KK said that if I want another baby, I need to start taking aspirin even before conceiving to lower the chances of preeclampsia+prem baby. We are still not sure whether we will go for another baby... The thought of going through all of it, and possibly worse, all over again, scares me...
 
Mommies and daddies using Neosure, may I know if we should discard the tin 3 weeks from opening as it says or can we keep in the fridge for longer? They only had the 900-gm tin and there is no way I can finish 900 gm in 3 weeks.
 
Hi daddies and mommies,

My girl has grade 3 IVH and doctor said inserting a shunt is inevitable. Wondering if anyone's child has a shunt inserted and what's the aftercare like.
 
Hi, Jynnie,

My son has grade 3 IVH also but i think they did a lumbar puncture to draw the fluid out but think they din manage to draw much out.

Maybe you can talk to the nurses or doctor to discuss whats the after care?
 
Hi daddies and mummies,

my elder twin has not pass motion for more than 3 days. We will usually insert the suppositories to let him pass. He is on EBM totally. Previously was on Neosure and pass motion every 3 to 4 feeds. Yesterday he went for follow up and the Dr suggest Hirschsprung's disease. Might need to admit and do rectal washout and biopsy.
I heard is quite common for baby on EBM to not have bowel for up to 7 days as indicated by the dietrician. Thats why I told the Dr I bring him home to observe and not intervene by giving him suppositories and observe if he pass motion within a week. My wife and I were quite upset right now and at a loss. Should we admit him immediately? I read forums and saw not passing motion everyday seems quite common for babies.
Do not wish my son to go through another surgery after his long stay in KKH, sending him in again is really painful. When the surgeon stuff his finger into his anus he bleed, and surgeon says is due to his finger and not to worry but is really painful to watch.
Never felt to live in fear everyday after his NICU stay and thinking life just got better.
 
Hi eedaddy,
WHen my gal was on EBM, the highest record tt she didnt poo is 14 days.....usually she will poo between 4-7 days (1 diaper is nt enough).... what we noticed is tt days she dun poo, she then to eat less and after her big business, she will b super hungry.
 


Thanks shelllow,

I wish to not use any suppositories and see how long he take to pass. Becos before the Dr appointment followup, I have dietrician follow up and she say is fine as long the stool is not pebble like. But when I see the Dr, she immeidately refer me to surgeon and ask us to admit the baby. I am thinking for the baby well being, is to let him stay but I do not wish to let him be treated like a guinea pig in KKH.
I notice they tend to blow things out of proportion and inform all the worse case scenario.
I understand they need to let us be prepared but it is also quite distressing for us. I monitor my son for a while, and by day 7 if he still dun pass, I will admit him and let them do all the tests for HD.
 
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