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Archive through September 18, 2007Cecelia Tan100 9-18-07  2:56 pm
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Smurferoos (smurferoos)
Junior Member
Username: smurferoos

Post Number: 187
Registered: 5-2007
Posted on Tuesday, October 23, 2007 - 10:08 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi, Just to share some news with everyone, I am 3 months pregnant! The morning sickness and tiredness is so unbearable, but what i want is for my baby to be healthy!!

Any special checkup I need to go for? As you know my first child has ASD? Quite worried!
 

QMS (qms)
New member
Username: qms

Post Number: 64
Registered: 7-2007
Posted on Monday, November 05, 2007 - 12:40 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Smurferoos!

Congratulations! I don't think there's anything else you need to do besides the scheduled ones. Just enjoy your pregnancy! All the best!
 

Smurferoos (smurferoos)
Junior Member
Username: smurferoos

Post Number: 188
Registered: 5-2007
Posted on Wednesday, November 07, 2007 - 1:19 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi QMS,

Thanx. Hopefully everything will turn ok fine. :-)
 

QMS (qms)
New member
Username: qms

Post Number: 66
Registered: 7-2007
Posted on Tuesday, February 12, 2008 - 1:33 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Smurferoos!

Happy New Year!

How are you getting on? Are you expecting a boy or girl this time? When is the EDD? How's your girl now?
 

Smurferoos (smurferoos)
Junior Member
Username: smurferoos

Post Number: 259
Registered: 5-2007
Posted on Friday, April 04, 2008 - 10:25 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi QMS!

Been such a long time since we chat!

Everything is ok, but now i am a stay at home mum! This time round is a boy and i am expecting the baby to be in my arms anytime now!
 

QMS (qms)
New member
Username: qms

Post Number: 71
Registered: 7-2007
Posted on Monday, April 07, 2008 - 8:53 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Smurferoos!

Nice to hear from you! Do keep us updated on your development.

How's your girl getting on? Is she coping well with the idea of being a sister now?
 

Smurferoos (smurferoos)
Junior Member
Username: smurferoos

Post Number: 261
Registered: 5-2007
Posted on Tuesday, April 08, 2008 - 1:18 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi,

My daughter started school. She was ok initially, but now that my son is due anytime, she is crying in school and more clingy, hopefully this phase will pass once my son is out!

I tried to prepare her, but it is difficult! sigh..anyway will keep you guys posted once i deliver.

How are things on your side??
 

QMS (qms)
New member
Username: qms

Post Number: 72
Registered: 7-2007
Posted on Thursday, April 10, 2008 - 2:28 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi!

Well...please do not expect this phase to pass so soon. It happened to my boy, too. But now, he dotes on his sister very much, and the two of them just love each other, always holding hands whenever they go out! So, you have to be patient with your daughter if she throws her tantrums. Don't lose your cool, ok?

Any improvement on your daughter's condition?

Everything's fine here. The kids are enjoying themselves in the childcare centre.
 

Smurferoos (smurferoos)
Junior Member
Username: smurferoos

Post Number: 265
Registered: 5-2007
Posted on Friday, April 11, 2008 - 10:04 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi,

Yeah, i am prepared for the jealousy and tantrums!! i just hope i can keep my cool!

Nope, there is no improvement in my daughter's condition, but as she is still thriving well, so the doc is thinking of doing the procedure either when she is 3.5 or 4 years old! Of cos i am worried!!

So nice to hear that your children are enjoying themselves at the childcare, my daughter was happy in school til now, she started crying again, maybe she is feeling insecure...sigh...
 

Vernon'sMummy (cherylkjh)
Intermediate Member
Username: cherylkjh

Post Number: 4086
Registered: 4-2007
Posted on Tuesday, April 15, 2008 - 11:28 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

GP detect extra sound on my son heartbeat, he is 2.5mth.... so i guess it is heart murmur.... i duno is it dangerous anot. as gp say it is very mild so not much of a problem.. if got problem shd it be detect when he was born???
 

QMS (qms)
New member
Username: qms

Post Number: 73
Registered: 7-2007
Posted on Wednesday, April 16, 2008 - 9:28 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi!

When the murmur is discovered has no implication on the seriousness of the problem. My son's murmur was only detected when he was 1 month old.

To set your mind at ease, why don't you bring your son to a specialist?

My two cents' worth.
 

Smurferoos (smurferoos)
Junior Member
Username: smurferoos

Post Number: 271
Registered: 5-2007
Posted on Wednesday, April 16, 2008 - 10:39 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Cherylkjh,

When baby is born, they will all have mumur, most cases, the hole will close by itself then the mumur will go away, else you will need operation to close it when they are bigger.

I agree with QMS, i think maybe you should bring your son to a cardiologist who specialise in children.

Don't worry too much!! Good luck!!
 

QMS (qms)
New member
Username: qms

Post Number: 74
Registered: 7-2007
Posted on Thursday, April 17, 2008 - 8:15 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

To add on to what Smurferoos said, the murmur need not only arise because a hole exists. It can be due to many, many reasons.

If you think you do not want to bring the baby to a specialist, observe the baby, and see if he has difficulty in breathing, or shows other signs of discomfort.

Many times, it's more to set our minds at ease. So, I would still suggest you bring him to a specialist.

Do keep us updated! Take Care!
 

Smurferoos (smurferoos)
Junior Member
Username: smurferoos

Post Number: 296
Registered: 5-2007
Posted on Monday, April 28, 2008 - 1:48 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi hi!

I have just delivered my baby son on sat! Keeping my fingers crossed that everything is fine with him!

I delivered him naturally with epi, he weighs 3.2kg!
 

QMS (qms)
New member
Username: qms

Post Number: 76
Registered: 7-2007
Posted on Thursday, May 01, 2008 - 7:29 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Congratulations, Smurferoos!

How did your girl respond?

Enjoy your new bundle of joy!
 

Smurferoos (smurferoos)
Junior Member
Username: smurferoos

Post Number: 303
Registered: 5-2007
Posted on Monday, May 05, 2008 - 12:59 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi,

My daughter quite ok with the didi, so far so good. Now i am breastfeeding, so tiring!!

Yeah since this will be my final child, i have decided to enjoy this time round and be less stressful! :-)
 

QMS (qms)
New member
Username: qms

Post Number: 77
Registered: 7-2007
Posted on Tuesday, May 06, 2008 - 12:45 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi!

Glad that your girl is receptive to the brother.

Did you breastfeed your girl too? Yes, it's indeed tiring, but hang on there. You will realise the benefits eventually. Anyway, the tiring portion is probably just the first month. It will be a bliss thereafter. So, Jia You!
 

Smurferoos (smurferoos)
Junior Member
Username: smurferoos

Post Number: 306
Registered: 5-2007
Posted on Tuesday, May 06, 2008 - 9:07 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi,

She is ok with the brother, but at times she will still break into tears and she has been very senstive lately...

Yep i breastfeed my daugther for 6 months, and i hope to do the same for my son! my son refuse to suck, so he just latch on and suck for a few mins then stop, so most of the time i have to express my milk instead....thanx for your support
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 852
Registered: 12-2007
Posted on Thursday, March 12, 2009 - 8:31 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi, is this thread active? Need support as my son has VSD and doc might want surgery in 6 mths (he will be less than 1 yr old). Wonder if it will be too soon.
 

QMS (qms)
New member
Username: qms

Post Number: 78
Registered: 7-2007
Posted on Thursday, March 12, 2009 - 10:25 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi!

Sorry to hear about your son's condition. Which doctor is he seeing?

Another forumer, Smurferoos, has a daughter with similar condition as your son. Wonder how is her daughter now.

I thought doctors will usually wait till the child is slightly older before they will consideration surgery?
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 855
Registered: 12-2007
Posted on Thursday, March 12, 2009 - 2:20 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi QMS i am also worried,
n my boy also has kidney problems so i worry that the op will be soon .... i am seeking 2nd opinion after speaking to one of the mummies. the current doc i m seeing is Dr KY wong.
 

QMS (qms)
New member
Username: qms

Post Number: 79
Registered: 7-2007
Posted on Friday, March 13, 2009 - 12:48 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi!

Did you ask Dr. Wong why the urgency? Conditions vary individually, and hence, it may not be that prudent to compare with other patients. Dr. Wong is an experienced doctor, and there should be a sense of urgency for him to decide on having the operation so soon. Why not you discuss with him further?

Which other doctor do you plan to approach?
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 863
Registered: 12-2007
Posted on Monday, March 16, 2009 - 10:08 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Thanks QMS - will ask Dr Wong this sat when we see him. I have decided to ask Dr William Yip for 2nd opinion. Just worried cos my bb so small and had to do surgery...but it cld be also his kidneys that is why must do earlier
 

QMS (qms)
New member
Username: qms

Post Number: 80
Registered: 7-2007
Posted on Monday, March 16, 2009 - 2:24 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi!

Do you mind sharing what happened to your son's kidneys?

Keep us posted of the development, ok? We are here to support each other. Stay strong.
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 868
Registered: 12-2007
Posted on Monday, March 16, 2009 - 4:31 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

thanks QMS - my son's both kidneys are dilated, reflux is v high at 4 and 5 - which means medicine cant help, a surgery is needed. Further test show that his right kidney only has 7% functionality, so we need to remove his kidney as well.

Thanks.
 

QMS (qms)
New member
Username: qms

Post Number: 81
Registered: 7-2007
Posted on Tuesday, March 17, 2009 - 10:09 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi!

Perhaps it's to avoid further complications that Dr. Wong suggested having the operation so soon. My son had ASD previously, and whenever we saw Dr. Wong or Dr. Tan (the other consultant in KKH), they suggested waiting till my boy was bigger (at about 15 kg) unless something happened. I suppose they, as medical professionals, knew how traumatic surgeries would be to patients.

In any case, hear what the other doctor says, too, to set your mind at ease.

Again, stay strong. If you need a listening ear, just share your feelings here. We are always available!

Take Care!
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 870
Registered: 12-2007
Posted on Tuesday, March 17, 2009 - 10:55 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi QMS - ya i tht weight is an issue but my PD say now medical so advanced no need to reach 10kg for op. I know Dr shankar did oop for less than 1kg bb before... but then my son is really small - he is just 5.34kg.

thks for ur listening ear....
 

QMS (qms)
New member
Username: qms

Post Number: 82
Registered: 7-2007
Posted on Monday, March 23, 2009 - 1:06 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Vanilla_pod_2!

How was the consultation with Dr. KY Wong? Did you clarify your doubts with him? Have you seen Dr William Yip?
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 891
Registered: 12-2007
Posted on Tuesday, March 24, 2009 - 9:04 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi QMS - my bb had his scan with Dr WOng on sat - his 2 big holes (VSD) at the lower chamber appear to have closed (THANK the LORD) and only 1 big one remained (3.5mm). His ASD which is 8.5mm is still there. His band is also tight -- so we were referred to dr Shankar whom we saw ysterday. The 2 docs will speak with my PD as well (since my son also has kidney prob) and most prob the surgery will be done in 1 mth's time. Rather shocking cos very soon but this cant be helped cos his band is tight. GOod ideal wt for surgery is 8kg but my son is just 5.44kg.

Havent seen Dr yip yet -will see him this sat.
 

QMS (qms)
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Username: qms

Post Number: 83
Registered: 7-2007
Posted on Wednesday, March 25, 2009 - 8:21 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi!

Glad to hear that his VSDs have rectified on their own. Good news will just follow one after another, so, have hope.

Have you decided to go for the surgery? If you have, is there still a need to seek second opinion? Did Dr Wong mention what sort of surgery will your boy go through? When you said "his band is also tight", what do you mean?

Your boy will grow up to be a strong and healthy boy. I will pray hard for him. Do let us know how he's getting on.

All the best!
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 898
Registered: 12-2007
Posted on Wednesday, March 25, 2009 - 9:05 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi QMS - thanks. Actually he has ASD and multiple VSD. for his lower chamber he has 3 big holes which 2 seem to have closed. 1 remained but being in the lower chamber it is dif for Dr S to patch it cos of all the muscles. He say he will try if he cant then he will leave it. The open heart surgery is for his ASD (8.5mm) and also take out his band. He did a banding on his pum atery to prevent too much blood to flow thru cos of his holes. Now the band is tight and the blood cld flow backwards and mixed the blue blood with pink blood which is a cardic problem.

We have decided to go for the op - though rather shocked it is so soon - but cant be helped cos his band is tight. We will still seek Dr Yip's opinion to see if his opinion is the same as Dr WOng.

Thanks for ur prayers...will update once i get the firm date for op
 

QMS (qms)
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Username: qms

Post Number: 84
Registered: 7-2007
Posted on Monday, April 13, 2009 - 4:09 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

HI vanilla_pod_2!

How is your son getting on? Please update us. We are all concerned.
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 964
Registered: 12-2007
Posted on Tuesday, April 14, 2009 - 1:05 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi QMS, thanks. Tom we will see Dr Wong and ask him when best date for surgery, if urgent then 27 April, if can wait then 12 May. saw dr Yip - wasted alot of time and $. Dr wong is still the best in my opinion.

We now trying to get him put on as much weight as possible....
 

QMS (qms)
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Username: qms

Post Number: 85
Registered: 7-2007
Posted on Tuesday, April 14, 2009 - 3:38 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi!

Thanks for your update.

Care to share with us your experience with Dr. Yip?

All the best! Do keep us posted!
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 989
Registered: 12-2007
Posted on Thursday, April 16, 2009 - 4:24 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi QMS, he wanted to sedate my bb to do echo..something Dr wong does not required us to do...and he kept complaining that we dont sedate bb so v diff for him to scan and we wasting time...that is just the tip of the iceberg...think i keep rest of comments silent....
 

Jinnous (jinnous)
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Username: jinnous

Post Number: 33
Registered: 5-2008
Posted on Wednesday, April 22, 2009 - 4:44 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi vanilla pod 2,

I hope your bb is fine.

I would like to share that I was born with a heart murmur too. Imagine the medical expertise 30 years ago and 30 years now. Be positive! I didn't have to go for op to close the hole. But I do have my fair share of downs during my younger days.

I had asthma, and every month in the middle of the nite my father had to carry me on his back and admit me to TTSH to breathe oxygen. I'm always blusish and I would feel faint easily. I remembered I passed out in the toilet once. My mum barred me from locking the toilet door after that incident. Dental treatments could only be done at SGH.

I did a final scan bout 10 years ago with my doc (he was the same doc who delivered me!) to confirm my condition. He said I'm fully recovered. The only thing that says I had heart murmur was the "double" closing sound heard on a stethoscope.

All the best! The medical expertise is so much better than the past. Have faith!
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 1043
Registered: 12-2007
Posted on Thursday, April 23, 2009 - 8:51 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

thanks jinnous.

My son will be going for his open heart surgery on 13 May. Pls pray for him. Thanks
 

QMS (qms)
New member
Username: qms

Post Number: 86
Registered: 7-2007
Posted on Tuesday, May 26, 2009 - 12:49 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi vanilla pod 2,

How's your son? Care to update us?
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 1231
Registered: 12-2007
Posted on Tuesday, June 16, 2009 - 9:49 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi QMS - he is ok, did his open heart surgery on 13 May in the afternoon. was in ICU for 2 nights and transfered to normal ward. Discharged on 18 May. Lost a few skills during operation time, slowly trying to retrain him back. Thanks for ur concern!
 

Happytots (happytots)
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Username: happytots

Post Number: 3
Registered: 6-2009
Posted on Sunday, June 28, 2009 - 8:09 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Vanilla pod 2,
My son is diagnose with VSD of 9.8mm. He is only 6 wks+. May I know your doc KY Wong is fm where??
So you find Dr Yip no good?
What abt Dr Shankar? Did you ever tot of consulting him back then??
 

QMS (qms)
New member
Username: qms

Post Number: 87
Registered: 7-2007
Posted on Monday, June 29, 2009 - 8:32 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Happytots!

KY Wong is from KKH.
 

Happytots (happytots)
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Username: happytots

Post Number: 4
Registered: 6-2009
Posted on Monday, June 29, 2009 - 12:26 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi QMS,
I think KY Wong (Head of Cardiac) don't do surgery?
It is done by Dr Ong Kim Kiat (head of cardiac surgical)at KKH?
Is he good.

Dr Shankar has left KKH.
 

QMS (qms)
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Username: qms

Post Number: 88
Registered: 7-2007
Posted on Monday, June 29, 2009 - 4:45 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Happytots!

Not sure whether Dr KY Wong operates or not. From the discussions above, it does seem that Dr KY Wong performs surgery. Perhaps vanilla pod 2 is in a better position to answer your query? My son used to be seen by either Dr KY Wong or Dr Tan TH.

In fact, my son was one month old when he was diagnosed with ASD. Why don't you consult Dr. KY Wong first and see what he says? Vanilla pod 2's son needs to go through surgery at such a tender age because of the other health conditions. The doctor will be able to advise you on the best course of action after seeing your son.

Take Care!
 

Happytots (happytots)
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Username: happytots

Post Number: 5
Registered: 6-2009
Posted on Monday, June 29, 2009 - 9:03 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi QMS,

Thanks. We are seeing KKH surgeon 2mr, but not KY Wong leh? That why I tot he does not operate.
Very heavy heart. Shd I seek a 2nd opinion??

Are u a SAHM?? You reply at 4:45 fm home or office??

Guess with my son condition, I would hv to resign and stay at home as well.

My husband will be a bit naggy as all household expenses will be on him. We hv 3 kids.
What abt you??
 

QMS (qms)
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Username: qms

Post Number: 89
Registered: 7-2007
Posted on Tuesday, June 30, 2009 - 8:38 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Happytots!

Are you sure the doctor you will be seeing tomorrow is a surgeon? Is this your son's first consultation? If so, does he need a surgery now to warrant seeing a surgeon?

This is what I obtained from the KKH website:

1. Cardiology

The Paediatric Cardiology Service is the main paediatric cardiology referral centre in Singapore.

The Service provides comprehensive care for congenital and acquired heart problems from the neonate to the young adult.

The diagnostic modalities include electrocardiogram, 2-dimensional echocardiography including fetal and transesophageal echocardiogram, and cineangiography.

Catheter based interventions include dilatation of heart valves and narrowed vessels; and closure of cardiac shunts like patent ductus arteriosus and atrial septal defects.

2. Cardiothoracic Surgery

We provide complete cover for all elective and emergency cardiothoracic surgeries in neonates, infants and children. Total surgeries average over 200 a year.

Range of Services:

a. Elective and emergency cardio-thoracic surgery for conditions in infants, children and adolescents up to 18 years of age
b. In-patient care of children needing cardio-thoracic surgery or surgical review
c. Out-patient pre- and post-operative assessment and follow-up care

Does your son have other medical conditions besides VSD? Does he appear to be having breathing difficulties?

If the doctor's recommendation is to wait for your son to grow before going through the operation, the best thing for you, as a parent, is to treat your son normally. If he doesn't have other medical conditions, there is actually no need for you to change your lifestyle.

Who is looking after the two elder kids?

I am a FTWM. Have 2 kids.

Please let me know how the consultation with the doctor goes.

Good Luck and Take Care!
 

kate (kate_boon78)
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Username: kate_boon78

Post Number: 99
Registered: 2-2005
Posted on Friday, July 03, 2009 - 3:12 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi Mummies

I would like to join in the thread too as my son as born with TGA (Transposition of Great Arteris) & ASD..This is a rare case in Singapore. He went for arterial switch prodcedure which is an open heart surgery at his 5th day of life done by Dr Shankar & the cardio in charge is also Dr KY Wong at KKH.

My son who is 8 mths old now is a healthy boy & will need to go review with Dr Wong every 6th mths. He will need antibiotics too if he wants to extract his teeth in future..Went for review last mth that he still has this heart murmur which Dr Wong says that it is expected after this surgery was done...

Am great to see this thread here as we mummies whose kids has heart problem can give each other encouragement here. Till now, I will still cry when I think back of all the tubes popping on my son then.....Now he is my precious little boy...
 

QMS (qms)
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Username: qms

Post Number: 90
Registered: 7-2007
Posted on Monday, July 06, 2009 - 2:55 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Kate!

Welcome on board! It is always good to have mummies sharing experiences with all forummers. We exchange views and we learn from each other.

Do you mind sharing with us what is TGA? Was his ASD fixed when he went through the operation, too?

Our children are gifts to us. Now that your boy is recovering, don't think too much at the past.
 

kate (kate_boon78)
Junior Member
Username: kate_boon78

Post Number: 102
Registered: 2-2005
Posted on Monday, July 06, 2009 - 4:33 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi QMS

TGA is where the aorta and pulmonary artery are reversed. The aorta receives the oxygen-poor blood from the right ventricle, but it's carried back to the body without receiving more oxygen. Likewise, the pulmonary artery receives the oxygen-rich blood from the left ventricle but carries it back to the lungs, more info can be found here.... (http://www.americanheart.org/presenter.jhtml?identifier=11074) This means to say his blood flows in wrong direction & requires an open heart op to switch both the arteries back. This is a major op & it took almost a day. Yes, his ASD is fixed as well during the op.. He was borned in TMC & was immediately transferred to KKH after being diagnosed with TGA..

I still remember that period was hetic & scary, imagine I cannot go home with my baby. ...I was then in confinement & travelled to KKH to see my son & transport my breastmilk to him everyday...

He was in ICU for 2 wks & then transferred to normal ward for 1 wk & luckily I had support from my family, friends & hubby else I sure will go into post-natal depression...Of cos, have gd doctors as well with recommendation from TMC

Ya, wont think too much of the past, especially seeing his development progressing well now...
 

QMS (qms)
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Post Number: 91
Registered: 7-2007
Posted on Wednesday, July 08, 2009 - 9:35 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Kate!

It's a good thing that your son's conditions were discovered and rectified early, and now he's on the road to recovery. If you don't mind sharing, can you please advise how was his TGA discovered?

What is your boy's weight now? Besides requiring antibiotics before he goes for any teeth extraction, does he need to be on long term medication? Information from the link you gave seemed to indicate that a life-long monitoring, and possibly another surgery, is required. I may have interpreted it wrongly, though. The website didn't say anything about the cause of this condition. Tried searching through the web, but couldn't find anything on the cause. Did the doctor mention anything? Or is it like ASD, where the cause is unknown?

It's your good fortune that you have so many people behind you during those tough days. You have also been very strong and persistent in giving your son the best. It's not easy to travel between home and the hospital during confinement, and transporting breastmilk at the same time. By the way, are you still breastfeeding your son?

Your son is a fortunate boy. Things will only get better for him.
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 1384
Registered: 12-2007
Posted on Tuesday, July 14, 2009 - 1:50 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi happytots - sorry for my late reply.

Dr KY WOng is still in KK. He is the cardiologist and for my son he did not perform in the surgery as the surgeron is Dr Shankar. But i know another child who will be putting a device in her heart - the putting in of device is done by Dr WOng but the cutting up is done by Dr KK ong (both in KKH0

Dr Shankar is now in NUH.


I see Dr Wong at his Mt E clinic (private) and Dr SHankar at GlenE (private).

From what i gathered from PDs (frens and my own)..Dr Wong is no 1 in his field.

I went to Dr yip as a second opinion before my son's opearation. He is v exp and bedside manners is VERY lacking. I regretted seeing him cos he scolded me for not sedating my son for the echo which is ridiculous as Dr Wong never needs to sedate my son. Dr Yip's Q is so long that my son woke up from his sedation and need another dose. That caused my hb to really flare up.


u dun really have to resign to be a SAHM for ur son. I am working and my son's heart condition was more complicated. He had swiss cheese condition. A big ASD, a big VSD and lots of muscular vsds. after his operation on 13 May, he is now blessed by God in recovering well and like what Dr Shankar say - let him have his normal childhood and be a kid.

My bb was diagnosed with his heart condition when he is 5 days old when he is in NICU recovering from his other operation. He also had kidney problems and hence this heart surgery was more tricky cos we worry abt his kidney (which Dr yip scared the wits out of me by saying there is a chance of kidney failure and hence dialysis). Dr Wong say chances low if surgery is fast. His surgery was done in 3 hrs time.

How is ur son's checkup at KKH?

Hi kate - yes there is a time i thot i cld not survive all these..but amazing my son's 2nd surgery i did not tear at all at ICU seeing him w all teh tubes. the nurses knew i was there before when my son is 1week old and cld understand how to read the mointor and i was helping them w bb. But we have to say our bbs are such fighters and strong warriors!
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 1385
Registered: 12-2007
Posted on Tuesday, July 14, 2009 - 1:55 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi happytots - another thing to add...my son's VSD (the peri) is abt 9++mm.. that hole is patched by Dr Shankar during his second heart operation. Technically it is good to do surgery when the bb is abt 8kg, but becos my son did a banding, his band is tight and is restricting his growth and feeding, hence we did the surgery when he is just 6kg.

during that time there is another bb who needed an emergency surgery in the morn and he just have 1 hole in the heart but there was no banding. Dr SHankar explained that banding is usually done when there is multiple holes (like my son's muscular vsds).

Now we r seeing Dr Wong for echos in 4 mths (sept) to see the artery (as it was tight due to the banding being tight)
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 1386
Registered: 12-2007
Posted on Tuesday, July 14, 2009 - 1:59 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi kate - my son is now 9 mths! if u like we can arrange for playdates!
 

Happytots (happytots)
New member
Username: happytots

Post Number: 6
Registered: 6-2009
Posted on Thursday, July 16, 2009 - 10:32 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

My son has his surgery done abt a fortnight ago.
However, complications and he has to do it again within 3 days. I am very sad and angry with surgeon team. How many pp need to do it 2x. Strike lottery also not so "june".
Now, the outcome also like floating in the air.
I am very disappointed with KKH.
I dunno how I can pull thru this ordeal. Keep thinking if I hv made the right decision to go for surgery.
I shd hv asked for 2nd opinion.
Anyway, I am very depressed now seeing his wounds etc. I worried abt my son and dunno I can still go back to work??
Sometimes, I hope I can turn back the clock and I will not subject him to the surgery.
He is quite hysterical now, prob post opn trauma.
Not to mention him, even I also find that it is damn traumatising.
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 1421
Registered: 12-2007
Posted on Friday, July 17, 2009 - 10:30 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi happytots, i pm u my HP no. U can call me. I

Are u seeking 2nd opinion now and who is his surgeon and cardiologist at KK? What are the complications? Is his 2nd op successful?

I understand u are in trauma and feeling v helpless and frsutrated. taking care of post op baby is not easy cos they are in pain and fuss alot. Hence u must be patient and calm, then bb can feel it.

I dun think u are wrong in letting ur bb go thru surgery, if the doc think he shld be operated it is usually a need to. The worst is no surgery and he turns blue or even black with other health complications, then the surgery will be comprised.

sayang him more, dun squeeze him cos his ribcage still healing, carry him and walk about in garden and tell him he is a strong boy.

My son was in trauma in the hospital, he usually is v friendly but then he absolutely hates the nurses and even the docs. To him nurses= pain cos he has to do physio. Last day his mood is better and smile and befriended back his docs.

Being small and young, they will forget the operation and pain, just hang on...v soon he will be a healthy little boy and the best part is u dun have to worry much abt his heart and he can grow normally.
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 1422
Registered: 12-2007
Posted on Friday, July 17, 2009 - 10:32 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi happytots, u did not turn on ur PM. U can pm me and i give u my HP no.... be strong gal!
 

Happytots (happytots)
New member
Username: happytots

Post Number: 7
Registered: 6-2009
Posted on Friday, July 17, 2009 - 11:13 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

What is PM??
How to turn on PM??
Dun want to put names on website.
Ya, first day, he is very hysterical, we only manage to get him to sleep at 4am.
These 2 days better.
I also dunno successful or not, they say need to review and assess again. Very unprofessional.
Vote of no confidence to them.
Now not seeking 2nd opinion, hope everything turns out well.
I really hate experience there. It still haunts me and of course my poor son.
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 1424
Registered: 12-2007
Posted on Friday, July 17, 2009 - 1:10 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

u can go to ur profile and turn it on. u can pm me by clicking on my name above and they will say sned private message (pm).

it is common to review and assess...my son's case the holes are patch nicely but his artery is constricted so echo in Sep. Maybe u can seek 2nd opinion by echo with Dr wong. thru echo he can see if ok.
 

Lia (cicilia)
Junior Member
Username: cicilia

Post Number: 206
Registered: 5-2007
Posted on Monday, August 03, 2009 - 1:14 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

--------------------------------------------------------------------------------
My boy is 2 mnths 2 wks old, new PD said he might have hole which hasn't closed up yet.
Prev 2 PD and 1 PD in hospital did not mentioned anything abt this, and they did thorough check up. Should I wait a while and seek a second opinion before going to Heart Specialist?
My first born also diagnosed with murmur when she was born, but was ok at 6 wks and later check up. Anyone with similar experience?
 

vanilla pod 2 (vanilla_pod_2)
Member
Username: vanilla_pod_2

Post Number: 1451
Registered: 12-2007
Posted on Wednesday, August 05, 2009 - 8:50 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi Lia, u may want to seek a cardiologist -- Dr Wong (KKH) and see what abt it.
 

amore (amore)
Member
Username: amore

Post Number: 1711
Registered: 10-2002
Posted on Wednesday, August 05, 2009 - 9:33 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

hi lia, maybe u shld bring ur boy to see the heart specialist. for the peace of mind. Both my gals are diagnosed with heart murmur.
 

Smurferoos (smurferoos)
Junior Member
Username: smurferoos

Post Number: 309
Registered: 5-2007
Posted on Thursday, August 13, 2009 - 9:24 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi, Sorry for the long absence, cos i was busy with my kids. Hi QMS, i hope you are well.

My daughter is diagnosed with ASD at 9 months, we have been monitoring her very closely, we need to do an ultra sound every 6 months, she is now 4 years old and lucky for us, her hole is getting smaller, but still there. So Pd says we still need to monitor her. Pd says maybe no need to go for operation :-)

hi lia, bring your son for an ultra sound, hopefully it is not that serious! Good luck!
 

Rachel Tan (fragelbee)
New member
Username: fragelbee

Post Number: 17
Registered: 1-2010
Posted on Wednesday, February 03, 2010 - 11:31 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Anyone still active here?

Does any mummy have any experience with TGA?

Thank you.
 

kate (kate_boon78)
Junior Member
Username: kate_boon78

Post Number: 304
Registered: 2-2005
Posted on Thursday, February 18, 2010 - 2:38 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Rachel
Yes, my son had it at birth & he went thru aterial switch...He is now 15 mths old...You may pm me if you want further discussion
 

Ang Pei (ang_pei)
New member
Username: ang_pei

Post Number: 67
Registered: 7-2005
Posted on Sunday, June 13, 2010 - 11:47 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi All,

Is there any mummy with kid who experience ASD (18mm) with enlarge heart?

Any operation done relating to this with Dr. Shankar?

Kindly advise.

Thank you.
 

lili pod (lilypodblooms)
New member
Username: lilypodblooms

Post Number: 1
Registered: 10-2010
Posted on Monday, October 18, 2010 - 11:12 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi all,

My daughter is due for a FT operation very soon. Looks like we will get Dr. KK Ong to do the operation at KKH? Anyone has previous experience with Dr. Ong?

Thanks
 

berrypie (berrypie)
Member
Username: berrypie

Post Number: 768
Registered: 4-2009
Posted on Tuesday, October 25, 2011 - 5:04 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi mummies,

Is this thread still activity? My dd was born with ASD (5.2mm) n VSD (6.8mm), Dr Tan fm KKH advice for op when she is 2-3 mth old but her weight is oni 2.8kg now.. I'm gg to Dr Shankar for a 2nd opinion.

Hope some mummies can give some advice
 

Cheong jennifer (issssey)
New member
Username: issssey

Post Number: 1
Registered: 2-2012
Posted on Saturday, March 10, 2012 - 2:26 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi.. Is this thread still active? I need advice cos my daughter had diagnosed VSD from birth.
 

Rayne Ng (hearty_mummy)
New member
Username: hearty_mummy

Post Number: 8
Registered: 3-2012
Posted on Wednesday, April 25, 2012 - 2:21 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

u can email me: heartymummy-2011@yahoo.com

my DD has both ASD and VSD. i realised that there isnt a lot of info for heart mummies like us.
 

~fang~ (fang82)
Junior Member
Username: fang82

Post Number: 358
Registered: 3-2010
Posted on Thursday, May 03, 2012 - 5:15 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

anyone have surgery done by dr kk ong?
 

Catloi (catloi)
New member
Username: catloi

Post Number: 2
Registered: 5-2012
Posted on Sunday, May 06, 2012 - 12:26 am:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hello! My bb had PDA at birth and had seen Dr Wong. He recommended my bb to see Dr Shankar for surgery at 5th month. However, as Dr Shankar does private practice and is not with KKH, the surgery fees will be high, I didn't send him to see Dr Shankar. Instead I went by the polyclinic referral way to see Dr Tan TH. Dr Tan concurred that my bb had to have surgery in order to lead a normal life. And my bb was supposed to be done by Dr KK Ong. However, eventually my bb was to be operated by Dr Nakao. And Dr Nakao did it wonderfully. Dr Nakao reports to Dr KK Ong and Dr Wong KY. Thus, if your child's surgery is to be done by Dr KK Ong, I believe it should be safe. I'm glad that I made the decision not to go for private practice and have the surgery done by Dr Shankar. The cost was kept low at KKH and the service and care towards my bb was fantastic.
 

~fang~ (fang82)
Junior Member
Username: fang82

Post Number: 378
Registered: 3-2010
Posted on Monday, June 11, 2012 - 4:58 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi Catloi,

what type of surgery did ur bb under go? can i have your email as i cannot pm you.
 

Ozl (linadriel)
New member
Username: linadriel

Post Number: 4
Registered: 12-2010
Posted on Tuesday, August 07, 2012 - 3:20 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi All,
My 2yr old daughter is diagnosed with Large ASD (1.98cm approx), so surgery is needed. Transcatheter device closure is deemed unsuitable to inadequate rims (i.e. no flesh sticking out from the wall where the hole is).
PD recommended to see Dr Shankar who is located at GlenE.
We will opt to do the procedure at KKH but not sure how the cost might work out if we request to have Dr Shankar perform the procedure. Anyone has any advice?

I've found some articles on the web in case anyone is interested in finding out more on the different congenital heart defects.

http://mountelizabeth.com.sg/resources/Articles/Heart_Vascular/4_MYB%20Ad_24Mar11_If.pdf

http://www.nuhcs.com.sg/patients-and-visitors/our-services/heart-lungs-and-vascular-surgery/surgery-for-paediatric-congenital-heart-diseases.html

http://www.annals.edu.sg/pdf/39VolNo8Aug2010/V39N8p629.pdf

If anyone as a review on your/your child's experience with Dr Shankar or any recommended surgeons at KKH, I will really appreciate it.
 

Fatbabe (fatbabe82)
New member
Username: fatbabe82

Post Number: 1
Registered: 11-2012
Posted on Tuesday, November 06, 2012 - 4:52 pm:   Edit Post Delete Post Print Post    Move Post (Moderator/Admin Only)

Hi all,

My girl was diagnosed with heart murmur when she was 3 days old by the PD and immediately he called Dr Wong down to the hospital and did an echo scan on her. She was diagnosed by with ASD (5.5mm, I think) and mild PS, which Dr Wong said it is mild, currently, She does not need to do any operation but if the hole is still there when she is older, there will be a need to close up the hole. We were asked to go back to him for review when she was 3 months old.

Last week, we went back to PD for review and the heart murmur is still there.

Called Dr Wong's pte clinic last week for appointment and the nurse told me that we have to bring $380 cash down for payment as they do not have nets or visa. I was thinking of going to polyclinic and get a referral letter and go to KKH instead as I am not sure I can afford the cost of treatment.

Catloi, what is the subsidised rate in KKH?

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